Steubenhoosier Posted November 4, 2019 Report Share Posted November 4, 2019 Prayers out to Ayden and to your entire family. Link to comment Share on other sites More sharing options...
IUFLA Posted November 4, 2019 Report Share Posted November 4, 2019 First one on my list...Every night. Link to comment Share on other sites More sharing options...
FKIM01 Posted November 4, 2019 Report Share Posted November 4, 2019 Sorry I'm late to the Animal House, but I'll certainly keep your family in my daily prayers. God bless you all... Link to comment Share on other sites More sharing options...
Zlinedavid Posted November 4, 2019 Report Share Posted November 4, 2019 From an old Garth Brooks song: "As long as one heart still holds on, then hope is never really gone" Ayden has far more than one. Link to comment Share on other sites More sharing options...
jv1972iu Posted November 5, 2019 Report Share Posted November 5, 2019 May the peace which passes all understanding be with Ayden and his entire family this day and forevermore. Amen. Link to comment Share on other sites More sharing options...
bluegrassIU Posted November 5, 2019 Report Share Posted November 5, 2019 HSN is more not a regular forum. Ayden is not a normal kid. We are in this together in our own way. Best of wishes to the whole family! Link to comment Share on other sites More sharing options...
NotIThatLives Posted November 5, 2019 Report Share Posted November 5, 2019 Just prayed. Will continue as well. Link to comment Share on other sites More sharing options...
BGleas Posted November 5, 2019 Report Share Posted November 5, 2019 Just seeing this, Billingsley! I am thinking of you and your family, and of course Ayden! Sending you and yours all the positive vibes I can! Link to comment Share on other sites More sharing options...
Colonialcrester Posted November 5, 2019 Report Share Posted November 5, 2019 I will continue to pray for him. Link to comment Share on other sites More sharing options...
Billingsley99 Posted November 5, 2019 Author Report Share Posted November 5, 2019 I cannot thank you all enough. I don't want anyone to think that his situation is grave. Currently all signs are pointing to a diagnosis of Shwachman-Diamond syndrome. With that condition it leads to lots of terrible possibilities. They basically will and can catch just about any virus. They also have a much higher likelihood of acquiring life threatening illness. Please continue to pray for MY HERO, my world. I trust in God and out my faith in him and know he will do what is best to glorify his kingdom. Thank you we appreciate HSN and I love you guys. Thank you. Ayden is strong and will prevail!! Link to comment Share on other sites More sharing options...
Reacher Posted November 5, 2019 Report Share Posted November 5, 2019 Thanks for the update(s). Glad to hear that you may be narrowing in on a cause. For me, not knowing is always the worst part. Stay strong, keep the faith and rest assured that HSN is there for you. God Bless. Link to comment Share on other sites More sharing options...
HoosierMama Posted November 5, 2019 Report Share Posted November 5, 2019 Prayers for Ayden and your whole family. No doubt he gets his strength from you. What a special kiddo you have! Link to comment Share on other sites More sharing options...
KDB Posted November 5, 2019 Report Share Posted November 5, 2019 Praying for Ayden and your whole family. Link to comment Share on other sites More sharing options...
IU Scott Posted November 5, 2019 Report Share Posted November 5, 2019 4 hours ago, Billingsley99 said: I cannot thank you all enough. I don't want anyone to think that his situation is grave. Currently all signs are pointing to a diagnosis of Shwachman-Diamond syndrome. With that condition it leads to lots of terrible possibilities. They basically will and can catch just about any virus. They also have a much higher likelihood of acquiring life threatening illness. Please continue to pray for MY HERO, my world. I trust in God and out my faith in him and know he will do what is best to glorify his kingdom. Thank you we appreciate HSN and I love you guys. Thank you. Ayden is strong and will prevail!! Once they diagnose this, is there any thing they can do to slow it down or help at all. Mt prayers are with Ayden and your hole family and remember you are never alone. Link to comment Share on other sites More sharing options...
Billingsley99 Posted November 5, 2019 Author Report Share Posted November 5, 2019 29 minutes ago, IU Scott said: Once they diagnose this, is there any thing they can do to slow it down or help at all. Mt prayers are with Ayden and your hole family and remember you are never alone. Thank you. We may be on the lucky end of things and it have no major consequences other than him getting sick much more than other kids which he has dealt with his whole like. The other problem is that he can catch serious virus easier. Options that have been talked about are infusion, blood tranfusions. or bone marrow transplant. At this point too early. Link to comment Share on other sites More sharing options...
IUDan93 Posted November 5, 2019 Report Share Posted November 5, 2019 Having kids is the greatest gift one could have, and you clearly have a truly great one. I hope our team shows half the guts, toughness, and heart Ayden has. If they do, watch out. Link to comment Share on other sites More sharing options...
IU Scott Posted November 5, 2019 Report Share Posted November 5, 2019 5 hours ago, Billingsley99 said: Thank you. We may be on the lucky end of things and it have no major consequences other than him getting sick much more than other kids which he has dealt with his whole like. The other problem is that he can catch serious virus easier. Options that have been talked about are infusion, blood tranfusions. or bone marrow transplant. At this point too early. will he still be able to go to school or is it to much of a risk on catching something. Link to comment Share on other sites More sharing options...
Billingsley99 Posted November 5, 2019 Author Report Share Posted November 5, 2019 20 minutes ago, IU Scott said: will he still be able to go to school or is it to much of a risk on catching something. Every thing will continue as normal. He is having try outs right now for the lead role in the school musical. Crazy part is this year has been the healthiest of his life. Has not missed a day of school except dr apts Link to comment Share on other sites More sharing options...
IU Scott Posted November 5, 2019 Report Share Posted November 5, 2019 2 minutes ago, Billingsley99 said: Every thing will continue as normal. He is having try outs right now for the lead role in the school musical. Crazy part is this year has been the healthiest of his life. Has not missed a day of school except dr apts That is great and hope he gets the lead. My daughter was in 3 plays and 3 musicals in her high school career and it is such a joy seeing your kids do something they love. Link to comment Share on other sites More sharing options...
Billingsley99 Posted November 5, 2019 Author Report Share Posted November 5, 2019 21 minutes ago, IU Scott said: That is great and hope he gets the lead. My daughter was in 3 plays and 3 musicals in her high school career and it is such a joy seeing your kids do something they love. Exactly. He had a main part last year as a 5th grader so hoping he gets the lead Link to comment Share on other sites More sharing options...
IU Scott Posted November 5, 2019 Report Share Posted November 5, 2019 5 minutes ago, Billingsley99 said: Exactly. He had a main part last year as a 5th grader so hoping he gets the lead At Knightstown they have a musical and a play each year and in her senior year she had the lead in both of them. Link to comment Share on other sites More sharing options...
Billingsley99 Posted November 6, 2019 Author Report Share Posted November 6, 2019 14 hours ago, IU Scott said: At Knightstown they have a musical and a play each year and in her senior year she had the lead in both of them. That sure will make a Dad proud Link to comment Share on other sites More sharing options...
Billingsley99 Posted November 7, 2019 Author Report Share Posted November 7, 2019 Just received call from Aydens Dr and she feels that the next step will be a bone marrow biopsy. Will happen some time over the next 10 days they want to check levels again as his WBC was still low. Thanks for all the prayers. we truly appreciate it more than you could ever imagine!! Thank you and God Bless!! Link to comment Share on other sites More sharing options...
jefftheref Posted November 9, 2019 Report Share Posted November 9, 2019 On 11/7/2019 at 12:47 PM, Billingsley99 said: Just received call from Aydens Dr and she feels that the next step will be a bone marrow biopsy. Will happen some time over the next 10 days they want to check levels again as his WBC was still low. Thanks for all the prayers. we truly appreciate it more than you could ever imagine!! Thank you and God Bless!! Thanks for the update and continued prayers for our young man and your family! He is truly an inspiration for me. Link to comment Share on other sites More sharing options...
Billingsley99 Posted November 11, 2019 Author Report Share Posted November 11, 2019 Bone marrow biopsy is scheduled for this Wednesday at 9am. Please keep my little boy covered in prayer and for good news. Thank you all Link to comment Share on other sites More sharing options...
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