HoosierKix Posted December 3, 2019 Report Share Posted December 3, 2019 Praying for safety and strength for Ayden and your family! Link to comment Share on other sites More sharing options...
Drroogh Posted December 4, 2019 Report Share Posted December 4, 2019 Still praying! Have to say as a word of encouragement, not the same situation but my boss had blood cancer one of the worst kinds. He went through a blood transfusion in which he was the donor they just ran all of his blood through a process beyond me, to remove the cancer. He is now 5 years cancer free! The treatments keep on advancing (beyond the devices we were building at my last job even though they were still in their infancy and at the time cutting edge) There is always hope! And more importantly there is always God! Link to comment Share on other sites More sharing options...
NotIThatLives Posted December 4, 2019 Report Share Posted December 4, 2019 Thinking of you guys and praying. Link to comment Share on other sites More sharing options...
rico Posted December 4, 2019 Report Share Posted December 4, 2019 God Bless. Link to comment Share on other sites More sharing options...
Billingsley99 Posted December 5, 2019 Author Report Share Posted December 5, 2019 Not much to report back on. We spent 5 hours at Riley hospital, meeting with Dr's and gettting some lab work done. Now we wait for results and go down the road that is laid out for us. Thanks again for the prayers and support. After a long day all Ayden wanted was some Sushi and a starbucks Frappe. I am blessed to have such an amazing inspirational little boy. I learn more and more from him every day. Link to comment Share on other sites More sharing options...
jefftheref Posted December 5, 2019 Report Share Posted December 5, 2019 59 minutes ago, Billingsley99 said: Not much to report back on. We spent 5 hours at Riley hospital, meeting with Dr's and gettting some lab work done. Now we wait for results and go down the road that is laid out for us. Thanks again for the prayers and support. After a long day all Ayden wanted was some Sushi and a starbucks Frappe. I am blessed to have such an amazing inspirational little boy. I learn more and more from him every day. Thank you for the update my friend. Continued prayers for Ayden and your family. You are always in my thoughts! Link to comment Share on other sites More sharing options...
Billingsley99 Posted December 19, 2019 Author Report Share Posted December 19, 2019 Yesterday Ayden got a nice surprise at his Dr. appointment. INDY 11 goalie Evan Newton stopped by to see him and delivered am autographed Jersey. Ayden and Evan have become close over the last 6 months. Made this day for sure. Link to comment Share on other sites More sharing options...
Billingsley99 Posted December 27, 2019 Author Report Share Posted December 27, 2019 Just wanted to take the time to update everyone on Ayden's health. The Dr. called this morning and the latest labs confirmed 2 separate mutations and confirmed the diagnosis of Schwachman-Diamond Syndrome. We will see a specialist on Jan 21st to go over the course of action and to prepare for the road laid out in front of him. Please continue to keep him in prayer and we really appreciate all that you do. I will keep you all informed as we learn more. Thank you and may God continue to bless each of you. Link to comment Share on other sites More sharing options...
Drroogh Posted December 27, 2019 Report Share Posted December 27, 2019 Still Praying! Link to comment Share on other sites More sharing options...
5fouls Posted December 27, 2019 Report Share Posted December 27, 2019 More prayers sent. Link to comment Share on other sites More sharing options...
IUFLA Posted December 27, 2019 Report Share Posted December 27, 2019 Every night... Link to comment Share on other sites More sharing options...
rico Posted December 27, 2019 Report Share Posted December 27, 2019 Continued prayers...tell the little guy Dakich says hi again. Link to comment Share on other sites More sharing options...
hoosierfan615 Posted December 27, 2019 Report Share Posted December 27, 2019 Praying! Link to comment Share on other sites More sharing options...
Billingsley99 Posted December 28, 2019 Author Report Share Posted December 28, 2019 When we told him the results yesterday he got really sad and asked if he was always going to he so short. We have always stressed to him it's no big deal but it bothers him a lot. We are meeting with an endocrinologist to discuss the possibility of HGH. Thank you all for continued prayers. Link to comment Share on other sites More sharing options...
Proud2BAHoosier Posted December 28, 2019 Report Share Posted December 28, 2019 2020 is going to be a great year for your family!!!!!!!!!!!! Link to comment Share on other sites More sharing options...
NotIThatLives Posted December 29, 2019 Report Share Posted December 29, 2019 @Billingsley99 man I take a big breath in and try to think of something to say. Know that you are continually in many prayers. Both my grandfather's battled some disease, though later in life. I feel like a promise that healed my broken heart was 1 john 5:4 For whatever is born of God overcomes the world; and this is the victory that has overcome the world-- our faith Link to comment Share on other sites More sharing options...
hoosierfan615 Posted December 29, 2019 Report Share Posted December 29, 2019 6 hours ago, Billingsley99 said: When we told him the results yesterday he got really sad and asked if he was always going to he so short. We have always stressed to him it's no big deal but it bothers him a lot. We are meeting with an endocrinologist to discuss the possibility of HGH. Thank you all for continued prayers. Praying it works out for you all! Our youngest had 7 1/2 years of HGH shots daily and grew 7 inches beyond her projected final height which made all the difference in her quality of life! Link to comment Share on other sites More sharing options...
Billingsley99 Posted December 29, 2019 Author Report Share Posted December 29, 2019 16 hours ago, hoosierfan615 said: Praying it works out for you all! Our youngest had 7 1/2 years of HGH shots daily and grew 7 inches beyond her projected final height which made all the difference in her quality of life! Thank you. I hope the dr feels that ayden siva good candidate Link to comment Share on other sites More sharing options...
IU Scott Posted December 30, 2019 Report Share Posted December 30, 2019 Still praying for Ayden and your family Link to comment Share on other sites More sharing options...
Billingsley99 Posted January 20, 2020 Author Report Share Posted January 20, 2020 Time for a little update an prayers. Ayden will see a specialist tomorrow and undergo so more testing. This Dr. specializes in Schwachmann-Diamond syndrome. Please keep him covered. My mother in law will start chemo tomorrow as well, she was recently diagnosed with stage 4 cancer. Please pray for her and my amazing wife as it has been really stressful on her. thank you for all you do. Link to comment Share on other sites More sharing options...
hoosierfan615 Posted January 20, 2020 Report Share Posted January 20, 2020 Praying for everyone 💜 Link to comment Share on other sites More sharing options...
Drroogh Posted January 20, 2020 Report Share Posted January 20, 2020 Still praying Billingsley Link to comment Share on other sites More sharing options...
rico Posted January 20, 2020 Report Share Posted January 20, 2020 Prayers for all... Link to comment Share on other sites More sharing options...
Parakeet Jones Posted January 21, 2020 Report Share Posted January 21, 2020 Thanks for the update. Praying for you all. Link to comment Share on other sites More sharing options...
jefftheref Posted January 21, 2020 Report Share Posted January 21, 2020 Continued prayers for Ayden and your family as well as your mother in law. Thank you for the update. Link to comment Share on other sites More sharing options...
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